“Los bebรฉs que nacen con defectos congรฉnitos en realidad tienen complicaciones en su sistema digestivo y a menudo necesitan vendajes para corregirlos, lo cual es una situaciรณn desafortunada”.

“Ivรกn vino al mundo, provincia de Quang Ninh, con un embarazo que alcanzรณ las 32 semanas y varios dรญas, un verdadero logro en su viaje prematuro. El bebรฉ naciรณ con una rareza anatรณmica del esรณfago que conecta con el pulmรณn en lugar de con el estรณmago. Fue diagnosticada con Atresia Esofรกgica, una afecciรณn que requiere cirugรญa. Ha sido sometida a siete exรกmenes de escaneo fetal a lo largo del aรฑo, sin embargo, el esquema es complicado y requiere cuidados especiales. Muchas gracias por su apoyo.”

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El Dr. Dรกng Hoร ng Duyรชn, Departamento de Neonatologรญa, Quang Ninh Obstetrics and Gynecology Hospital, dijo que la Ictiosis Harlequรญn es una enfermedad extremadamente rara y severa que afecta a aproximadamente 1 de cada 500,000 personas. La piel de estos niรฑos hace que la dermis sea 10 veces mรกs gruesa que la piel normal y el crecimiento de la piel es siete veces mรกs rรกpido que en personas normales.

""

“Relรกjate con el esquรญ en la nieve

El salto nevado de Ictiosis Harlequรญn es una maravilla, ya que en estas condiciones especiales, el invierno es la รฉpoca para experimentar algo de nieve. Esta nieve humana es algo sorprendente. Toma acciรณn y mecรกnica de esquรญ, ese tรฉcnico te es necesario para el esquรญ.”

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